National Haemophilia Database Support
That the National Haemophilia Database, run by the UKHCDO, merits the support of additional central funding.
- The Government stated in December 2024 that NHS England currently provides approximately 40% of the total annual cost for running the National Haemophilia Database, and that a task and finish group was assessing funding needs (Government Response to the Infected Blood Inquiry, Cabinet Office, December 2024).
- No published decision on additional central funding for the National Haemophilia Database has been identified to March 2026.
How was this evidence gathered?
Response
Accepted
Response
AcceptedUK Government
Recommendation 9f: NHS England currently provides ‘central’ funding of approximately 40% of the total annual cost for running the National Haemophilia Database. A task and finish group relating to the database has been established, reporting into the overarching recommendation 9 expert group.
Published Evidence
Published assessments of progress from inspectorates, select committees, official progress reports, and other sources. Source type badge indicates whether each assessment is independent or government self-reported.
As of 13 January 2026: 3,721 people asked to start claims, 3,546 begun process, 3,074 received offers totalling £2.47bn, 2,861 paid totalling £1.89bn. Third compensation regulations in force 31 December 2025.
View detailed findings
IBCA exceeded initial expectations. Three sets of regulations now in force covering infected persons, affected persons, and supplementary routes. £11.8bn committed in October 2024 Budget. Independent review found "very creditable progress."