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NHS England

P-001324 · Statement · Decision date: 7 March 2022 · View NHS England scorecard
Administration Continuing healthcare Poor health and social care integration
Complaint (AI summary)
Mr R complained NHS England's Independent Review Panel wrongly ruled his father ineligible for continuing healthcare funding, failing to properly consider his needs and key indicators.
Outcome (AI summary)
Closed. NHS England agreed to reconsider its decision regarding Mr R’s father's eligibility for continuing healthcare funding, achieving the desired outcome for the complainant.

Full decision details

The Complaint

4. Mr R complains NHS England’s Independent Review Panel (IRP) upheld NHS Greater Preston Clinical Commissioning Group’s (the CCG) decision that his father, Mr D, was not eligible for continuing healthcare (CHC) funding for the period between 15 May 2009 to 29 October 2012.

5. Mr R complains about the way the IRP reached its decision. Specifically, he complains the panel: · marginalised his father’s needs in the behaviour domain · did not properly consider the nature, complexity, or intensity key indicator.

6. Mr R says because of the events, his father was not found eligible for CHC funding. He also says the decision has caused him distress and frustration.

7. As an outcome, Mr R would like NHS England to reconsider its decision.

Background

8. Greater Preston CCG reached a decision that Mr D was not eligible for CHC funding between 15 May 2009 to 29 October 2012.

9. Mr R appealed this decision at local resolution stages, however, the CCG stated its decision was sound.

10. Mr R escalated the complaint to NHS England. NHS England’s IRP reviewed the CCG’s decision. The IRP concluded that the original decision, that Mr D was not eligible for CHC funding between 15 May 2009 to 29 October 2012, was sound.

Findings

How we reach a decision

14. Before we decide if we should investigate a complaint, we look at whether there are signs the organisation has got something wrong. We do this by comparing what should have happened with what did happen.

15. If what happened fell far short of what should have happened, we call this a failing. When we see indications of a failing, we next look at whether that failing had a negative impact on the person in question. If we think it did, we will go on to consider what, if anything, the organisation has done to try to put things right.

16. Before we go on to discuss our decision, we would like to explain some information about how an IRP reaches its decision and what this means for how we look at it.

17. Whether an individual is eligible for CHC funding is a discretionary decision. It is our role instead to decide if the IRP made its decision in line with the National Framework.

18. We cannot question discretionary decisions when they have been made without maladministration (fault) and we can only uphold a complaint about an eligibility decision if there is some specific fault in the way the IRP reached its decision. Such decisions are based on clinical judgements and opinions. The fact someone else has a different opinion does not mean that there must have been a fault in the decision-making process.

19. The purpose of the IRP is to review the procedure the CCG followed when it made a decision about a person’s eligibility for CHC funding. In determining whether the CCG followed the correct process and whether it correctly applied the eligibility criteria, the IRP can recommend that the case be reconsidered by the CCG. This will address any faults identified in the process. The IRP can also reach a view as to whether the individual should or should not be considered to have a primary health need.

20. When we look at a complaint about an IRP, we consider whether it took account of all the relevant information in reaching its decision. For this we consider the IRP report, the information Mr R provided, and records the Chair considered when reaching a decision.

Our decision

21. The National Framework Annex D: Independent Review Panel Procedures states: "An IRP’s key tasks are, at the request of NHS England, to conduct a review of the following: a) the primary health need decision by a CCG; or b) the procedure followed by a CCG in reaching a decision as to that person’s eligibility for NHS continuing healthcare and to make a recommendation to NHS England in the light of its findings on the above matters".

22. Having reviewed the information we have available, particularly the IRP report, we identified the report lacks detail, specifically what the panel considered when reaching a decision for each of the domains and key indicators. Therefore, there are indications that it has not properly considered the primary health need decision reached by the CCG.

23. We have also identified the panel does not refer to Mr R’s submissions, and therefore we find indications that these were not considered when NHS England reached its conclusions.

24. For example, for the intensity key indicator, we can see the Chair has reached a conclusion that there were no needs of an intensity that required specialist or prolonged interventions. However, the report does not include details of what interventions Mr D required and how these were managed.

25. In the same way for the domains, the report acknowledges that the family disagreed with the CCG’s weightings. It then goes on to reach a decision on the relevant weighting but does not properly discuss why it has reached this weighting.

26. The limited detail in the report has made it difficult for us to reach a decision on whether there were any failings in NHS England’s decision-making process.

27. We discussed this with NHS England, and it has agreed with our observations. NHS England has agreed to complete a further report, which will include reference to the relevant information. This report will be sent to Mr R within two weeks from the date of this letter. We hope Mr R is pleased with this outcome.

28. It is important NHS England is able to look at Mr R’s complaint, give him an adequate response, and have the opportunity to put right any mistakes. Often this is the quickest way to resolve complaints. Therefore, we will not be taking any further action at this time.

29. We have requested the report NHS England produces is sent directly to Mr R, and we hope after reading the further information provided in the report that this resolves his concerns.

Conclusion

30. As NHS England has agreed to reconsider its decision, we consider the complaint to be resolved at this stage and do not propose any further actions.

Our Decision

1. We have carefully considered Mr R’s complaint about NHS England. We acknowledge NHS England’s decision has caused Mr R distress and frustration. We understand how important this complaint is to him.

2. Following our consideration, we have identified indications that something has gone wrong in NHS England’s decision-making process. We discussed this further with NHS England and it has agreed to take further actions and reconsider its decision. We hope Mr R is happy that his desired outcome has been achieved.

3. Based on this, we have decided NHS England has taken steps to put right the distress caused to Mr R because of its decision.

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