28. Before we decide if we should conduct a detailed investigation of a complaint, we look at whether there are signs the organisation has got something wrong. We do this by comparing what should have happened with what did happen. We have done this and have not found any indications that something has gone wrong.
Failed to correctly diagnose EUPD in February 2023
29. Mr N’s main concern is the Trust failed to diagnose his wife’s EUPD when she was admitted to hospital in February 2023.
30. Mr N says the Trust were aware of Mrs N’s previous private hospital admissions. He thinks because of his wife’s history, the Trust should have known she had a long-standing disorder. Mr N believes the Trust should have done more to appropriately diagnose Mrs N sooner.
31. Mr N says the Trust should have requested Mrs N’s private records when she was admitted to hospital. He says this would have helped it to better understand his wife’s symptoms and her previous diagnosis of EUPD. Mr N told us his wife’s cause of death was due to her state of mind at the time she was discharged. He explained Mrs N had long periods of inactivity which he feels happened because of the Trust’s failure to correctly diagnose her and provide adequate treatment and support from the time of her admission.
32. In its response, the Trust said it afforded Mrs N working diagnoses which reflected its assessments during her time on the ward. The Trust denied it misdiagnosed Mrs N. It said its views of her presentation and diagnosis of Mrs N developed as she shared information, along with her response to medication and assessments on the ward.
33. The Trust said Mrs N did not stay on the ward for an unnecessary prolonged time. In its response, it said it felt Mrs N had an underlying personality element to her presentation during the early stages of admission. Without further evidence, the Trust said it would have been against best practice and national guidelines to confirm an EUPD diagnosis as soon as Mrs N was admitted.
34. NICE quality standard QS88 explains that borderline and antisocial personality disorders are complex and difficult to diagnose.
35. NICE guidance CG78 explains the range of emotional and behavioural problems experienced by people with EUPD can be very different. It says some people can maintain relationships and activities, but others may have very high levels of emotional distress involving self-harm, which result in repeated crises. The guidance explains ‘its course is variable and although many people recover over time, some people may continue to experience social and interpersonal difficulties.’
36. Our adviser said with the above guidance in mind, EUPD is very difficult to diagnose. He explained it is therefore key clinicians take their time to diagnose patients, particularly in times of crisis. Our adviser told us this is more important for patients who do not have recent history, or hospital admissions. With EUPD, he said clinicians are looking for a long history of problems.
37. Mrs N’s medical records show she was admitted to hospital with low mood, panic attacks and thoughts of self-harm. Mrs N’s recent crisis and symptoms were linked to the death of her mother in October 2022. Prior to this, our adviser said Mrs N’s mental health appeared to be stable.
38. We understand Mrs N was previously diagnosed with EUPD during historical private hospital admissions. Mrs N’s last private admission took place in 2007, over a decade before she was admitted to hospital.
39. We have carefully reviewed Mrs N’s medical records and have not seen evidence that Mrs N had any recent medical history similar to EUPD prior to October 2022. As noted in paragraph 34, guidance explains people may recover from EUPD. Based on what we have seen, we do not think it was unreasonable for the Trust to take its time to come to its own conclusion on Mrs N’s more recent presentation.
40. The Trust diagnosed Mrs N with mixed anxiety and depression, plus grief reaction. Mrs N’s records show this was after she reported symptoms of anxiety and depression had worsened since the death of her mother.
41. Our adviser explained this was a reasonable working diagnosis based on Mrs N’s symptoms and the information available in her recent healthcare records. We consider this was in line with GMC guidance which says clinicians must provide a good standard of care and practice and if assessing, treating or diagnosing patient, they must adequately assess the patient’s conditions, taking into account of their history…’. Taking into account our adviser’s comments, we do not find indication the Trust should have diagnosed EUPD at this time instead.
42. We know Mr N thinks the Trust should have obtained Mrs N’s private medical records to allow it to correctly diagnose her. We can understand why Mr N would query this, now it is known the Trust changed its diagnosis of Mrs N’s condition to EUPD once it had reviewed her historical private records.
43. We can see from Mrs N’s medical records she had capacity to provide consent and was able to represent herself and her condition at the time. We share our advisers view that it was appropriate for the Trust to place more weight on this and engage with Mrs N herself.
44. Mrs N’s records show that she was actively involved in her treatment during her time in hospital. For example, on 3 February clinicians noted Mrs to be compliant with medications. Mrs N also signed a treatment engagement plan. On 27 February, clinicians noted she interacted well with nursing interventions.
45. At the time she was admitted, the records also show Mrs N shared important information with the Trust about her health and history which she thought relevant, including personal trauma dating back to her childhood. However, we cannot see in Mrs N’s records she shared her previous EUPD diagnosis with the Trust, this was open for her to do so.
46. Our adviser explained it was appropriate for the Trust to involve Mrs N in its decision making, coming to a diagnosis based on her more recent presentation.
47. We understand the Trust discussed obtaining Mrs N’s historical private hospital records with Mr N, but Mr N advised he preferred them to be sent directly to him. Mr N requested Mrs N’s records in February 2023 and sent these to the Trust in April 2023, a few days after the private hospital provided them to him.
48. For the reasons explained above, we have not identified an indication that the Trust should have diagnosed Mrs N with EUPD sooner than it did. This means we see no indication of a failing here. We consider the Trust acted in line with the NICE guidance and GMC guidance mentioned above in this decision. This is because the evidence shows it was appropriate for the Trust to take its time to diagnose EUPD and come to its own conclusion based on Mrs N’s more recent presentation.
49. Although we did not see indication of a failing with the Trust’s consideration of Mrs N’s diagnosis, we thought it may be useful to share that our adviser explained even if the Trust had received the records sooner, with evidence of Mrs N’s historical EUPD diagnosis, it would have been unlikely to have altered its view at the time of her admission. This is because of how much time had passed since Mrs N received this from the private hospital. Our adviser said it was good practice for clinicians to not rush into clinical decision making and form their own view based on up-to-date information. We also share this view and hope this provides some degree of assurance to Mr N about the care provided to his wife.
50. We recognise that Mr N continues to be profoundly affected by what happened. We are grateful to him for sharing this experience with us and hope this statement fully explains the reasons why we will not take further action on his complaint.