4. Mr L complains about the Trust’s care and treatment of his son. He says from December 2019 to March 2022 the Trust did not fully investigate his son’s symptoms and discharged him without diagnosis in June 2020. Mr L says the Trust’s reply to his complaint in December 2022 was not fair as it was investigated internally. Mr L says in January 2023, the Trust wrote to his son’s school blaming him for his son’s condition.
5. Mr L says his son’s lung condition got worse and he now has irreversible scarring on his lungs. He explains his son is now on a lot more medication causing side effects and he needs physiotherapy twice a day. He says his son misses out on school activities like sports. He says his son is constantly upset and struggles with his daily two-hour physiotherapy routine and nebuliser (a device that sprays a fine mist of medicine through a mask).
6. Mr L says it was distressing to be blamed for his son’s condition and he feels the teachers treat him differently now.
7. Mr L says this experience put a strain on family life and it is stressful to be constantly worried about his son’s condition.
8. Mr L wants compensation of at least £10,000 for the damage caused to his son and the family. Mr L would like an apology and for the Trust to accept its failings. Mr L would also like to see the Trust make service improvements.