3. Miss A complains about the care provided to her father, Mr B, by University Hospitals of Leicester NHS Trust (the Trust) between 6 and 27 March 2021. Miss A also complains about the Trust’s handling of her complaint and issues in relation to Mr B’s inquest. Specifically:
• Confirmation of who was in charge of Mr B’s care and escalating the delayed review by orthopaedics. Who and why they decided to continue to keep Mr B bedbound which made him prone to hospital acquired pneumonia • Whether any escalation by the doctors on ward 34 was made to orthopaedics between 9 and 15 March 2021. And if not, why?
• Why was there a delay in sending a trolley to take Mr B for X-rays after the orthopaedics review on the evening of 17 March 2021? A porter with a wheelchair only came to take Mr B for X-rays on the afternoon of 19 March 2021 and then returned with a trolley at 9.40pm when Mr B was half-asleep and unwilling to go for the X-rays. The X-rays did not take place until Saturday 20 March 2021 and this in turn delayed physiotherapy seeing Mr B until Monday 22 March 2021 • Review of blood tests in March 2021 to compare these to tests from November 2020 and January 2021, to judge whether Mr B had myeloma instead of MGUS in March 2021. Reviewing Mr B’s symptoms during his hospital stay to judge whether he had myeloma, especially as his medical records from March 2021 state that myeloma should be reviewed due to his out-of-range blood results. At Mr B’s inquest, the doctors present could not say for certainty whether Mr B had myeloma, and no haematology specialist was present • Why Mr B’s CRP marker never materially reduced despite antibiotics being administered from the day of admission on 6 March 2021? Which antibiotics were used, their doses and between what dates? If changes were made to the antibiotics, why and what were the conclusions on their effectiveness?
• How was Mr B’s fluid in lungs observation from 6 March 2021 investigated specifically? What diuretic medicine was being used and between what dates, and on which doctors’ recommendation? Did the doctors feel that this symptom was resolved?
• Personal distress to Miss A following bereavement in terms of the protracted complaint and delays in finding out exactly what went wrong and by whom from the Trust to try to ensure that errors are not repeated. The constant delays, typographical mistakes, and lack of response from the Trust meant Miss A could not pursue complaints to the NMC and the GMC. Miss A had to write to the Trust to eventually obtain the names of the nurses, which were provided on 3 May 2023 despite asking for their names since 17 March 2021. Actions were agreed with the Trust at a virtual meeting on 5 January 2022 and then they stopped responding or redirected Miss A towards Access to Health Records for some of her queries, and when Miss A approached Access to Health Records and waited the several months for them to consider her request, they signposted her to the Trust again. Miss A feels that she has been pushed around since Mr B’s admission, and no one wants to respond to her questions. It feels like a stalling tactic to not respond to her concerns when Mr B was alive, and now to give Miss A the run around on agreed actions and the Trust suggested deadlines and failing to deliver with no explanation. Miss A says this suggests maladministration as a minimum on the Trust’s part. She is unable to get closure, and Miss A says her family have been unable to complete the last religious rites for Mr B’s ashes (when this should be done soon after the cremation) • In addition, Miss A says her and her mother have had to leave the home that they shared with Mr B for 45 years as a direct consequence of his untimely death. Miss A says she had to relocate with her mother as they could not face going back to the Trust for her mother’s continued cancer care (she was diagnosed with oral cancer in January 2018 and was in the middle of her 5-years’ follow-up care with the Trust when Mr B died). Continuing to go to the Trust for quarterly check-ups caused Miss A and her mother immense anxiety and upset, and they had to move to be closer to other family, who could provide care for Miss A’s mother who is disabled, when Miss A needed to go into her office for work. Miss A says the legal remedy does not cover for these stresses, costs, and disruption in their lives and her mother’s cancer care, which incidentally was delayed by a year as it took this length of time for records to be passed by the Trust to the new hospital • During the inquest, Miss A says the coroner informed her that the Trust should have referred Mr B’s death in 2021 and her approach to the coroner had prompted an enquiry at the Trust and there were other instances where the Trust had not referred unexplained, and therefore potentially unnatural, deaths to the coroner’s service when it should have. Miss A says an earlier inquest would have helped to give her closure; instead, the Trust’s lack of referral to the coroner has contributed to her distress following bereavement from an avoidable death. Miss A says she felt suicidal since Mr B’s untimely passing and Trust processes, including the complaints process, have exacerbated her mental torture and anguish over several years • The doctors that attended the inquest clarified that Mr B did not have sepsis until the date of his death, yet the hospital medical records refer to sepsis and urosepsis throughout his stay of 3 weeks. Miss A says this has had an impact on the medical negligence claim as misleading records were referred to. Again, the consequence has been to delay resolution and closure which has contributed to Miss A’s distress and anguish. Proving the inaccurate records have also come at a financial cost to Miss A • Miss A says the inquest also brought to light two further safety incidents recorded on Mr B’s care and additional comments to a structured judgement review. These were not shared with Miss A by the Trust despite the formal complaint that she raised with them and corresponded at length on between 2021 and 2023. Miss A says she was only aware of the one death incident and structured judgement review comments up to a point prior to the inquest • Miss A says the doctors at the inquest could not agree whether Mr B had heart failure, however, one said that he had heart failure with preserved ejection fraction (HFpEF). This was the first time that clear reference was made to this despite Miss A asking about heart failure repeated times in her complaints about care since 2021 • Miss A says one doctor at Mr B’s inquest volunteered to keep her informed about the status of IT improvements that were planned at the Trust, at every 3 to 6 months intervals. Miss A contacted him 6 months after the inquest and was informed that nothing had progressed and that she should contact the Chief Executive of the Trust, which Miss A did immediately on 8 August 2024. Miss A says the Chief Executive then passed her concerns to the complaints team. It took until 4 November 2024 to respond and even then, their answers were not detailed and ignored two of Miss A’s questions. The Trust complaints process has not improved with time; in fact, the process has got worse because complaints addressed to the Chief Executive are ignored and without any explanation
4. Overall, Miss A says that Mr B’s death was avoidable, and this has caused her and her family a great deal of distress which is ongoing.
5. As a set of outcomes, Miss A wants further explanation about her outstanding concerns with Mr B’s care and changes in procedure at the Trust to prevent similar failings in the future. Miss A also wants a financial remedy of £2950.