Family Engagement

Health and Social Care ('HSC') Trusts should publish policy and procedure for ensuring that children and young people are cared for in age-appropriate hospital settings.

Clinicians should respect parental knowledge and expertise in relation to a child's care needs and incorporate the same into their care plans.

Trusts should seek to maximise the involvement of families in SAI investigations and in particular: (i) Trusts should publish a statement of patient and family rights in relation to all …

In the event of new information emerging after finalisation of an investigation report or there being a change in conclusion, then the same should be shared promptly with families.

The practice of involving parents in care and the experience of parents and families should be routinely evaluated and the information used to inform training and improvement.

Parents should be involved in the preparation and provision of any such training programme.