11 Accepted

National palliative and end of life care data provide valuable insight into patterns of healthcare...

Conclusion
National palliative and end of life care data provide valuable insight into patterns of healthcare use and location of death, however the evidence presented demonstrates substantial gaps in local data collection and utilisation. Without consistent, granular and timely data, ICBs and providers cannot reliably commission, plan, or improve palliative and end of life services in line with their population needs. (Conclusion, Paragraph 51)
Government Response Summary
The government agrees on the importance of data, noting NHS England is strengthening expectations and providing tools. From April 2026, ICBs are expected to use comprehensive data for commissioning, and the MSF will set clearer expectations for data use and accountability.
Government Response
Accepted
HM Government Accepted
Accept We agree that high-quality, consistent data is essential to effective commissioning, service planning, quality improvement and understanding and addressing inequalities in palliative care and end-of-life care. NHS England provides national data tools via a Palliative and End of Life Care Dashboard to support commissioners, and is strengthening expectations on data use through the Strategic Commissioning Framework and MediumTerm Planning Guidance. From April 2026, ICBs are expected to understand and use comprehensive utilisation and cost data for people with palliative care and end-of-life care needs as part of populationbased commissioning and performance oversight. The MSF will also set out clearer expectations on the data, outcomes and measures that systems should use to support consistent commissioning, transparency and inequality monitoring, while allowing appropriate flexibility to reflect local population needs. Our goal is to embed the active use of a robust dashboard and management information into core commissioning and accountability processes.
Addressee Bodies
Department of Health and Social Care
Timeline
Recommendation age 0.3 yrs
Report published 24 Mar 2026