13
Accepted
Poor data sharing and lack of integration across NHS, social care, voluntary and private providers...
Conclusion
Poor data sharing and lack of integration across NHS, social care, voluntary and private providers creates confusion, delays and gaps in continuity for people at the end of life, frequently placing the burden of coordination care on patients and carers during what is an extremely emotional and challenging period. Despite existing systems for data sharing, inconsistent uptake, poor interoperability and limited outcome-level information reduce effectiveness. (Conclusion, Paragraph 55)
Government Response Summary
The government agrees on the importance of integrated palliative care and outlines plans for a Single Patient Record to bring together patient information across health and social care. They will introduce legislation to enable all providers, including private and voluntary sectors, to contribute to and access this record to facilitate more seamless care.
Government Response
Accepted
Government Response
Accepted
HM Government
Accepted
Accept Integrated palliative care and end-of-life care services are central to the shift towards community-based care. They enable care to be delivered closer to people’s homes. NHS England’s statutory guidance for palliative care and end-of-life care highlights the importance of high-quality, coordinated care, including sharing key information about the individual’s needs and priorities shared digitally, through Shared Care Records, to enable more effective and efficient care. The objective of the Single Patient Record is to bring together patient information from the source records of different services across health and social care in England, to provide a single account of people’s health and care needs for use in different care settings. It will not, however, replace conversations with clinicians or become another complex IT system. The Single Patient Record will focus on the health and social care service in England, but the aim is for a truly comprehensive health and care record that overtime and where technical solutions are in place could extend to independent / private providers and the voluntary sector. The development of the Single Patient Record will seek to embrace records from as wide a range of providers as possible, always ensuring the appropriate clinical and information governance, and technical security, is in place. Our ambition is that, from 2028, patients in England will be able to view their Single Patient Record via the NHS App, starting with maternity and frailty. Healthcare professionals will access, via a secure interface, a single, reliable source of data on each patient, so they can give appropriate, safe and more coordinated care. In addition, people will have their record in their hands and will be able to share key information with their health and care providers through the NHS App enabling care providers to access key information about their health and care. The Single Patient Record will support our wider integration work such as the Neighbourhood Health Service and Integrated Health Organisations by providing a single trusted source of patient information, including care plans, that will be available to providers of health and care enabling them to offer more seamless co-ordinated care across the range of health and care services. We will bring forward legislation to provide a framework for the Single Patient Record. The powers we are taking will mean that we can enable all providers of health and social care in England, including private and voluntary sector providers to contribute to, and access, the Single Patient Record, as the programme develops and in line with the prioritised use cases.
Source
Committee
Health and Social Care Committee
Inquiry
Palliative Care
Report
6th Report - Palliative Care
24 Mar 2026
HC 1763
Addressee Bodies
Department of Health and Social Care
Timeline
Recommendation age
0.3 yrs
Report published
24 Mar 2026