PENROSE-1 Response Accepted

HCV Testing for Pre-1991 Transfusion Recipients

Recommendation

The Scottish Government takes all reasonable steps to offer an HCV test to everyone in Scotland who had a blood transfusion before September 1991 and who has not been tested for HCV.

Published Evidence Summary
The following publicly available evidence relates to this recommendation:
- The Scottish Government established a Short-Life Working Group in 2015, comprising representatives from the Scottish Government, Scottish National Blood Transfusion Service, and Health Protection Scotland, to assess the feasibility of the recommended lookback exercise (Short-life working group progress report, Scottish Government, September 2016).
- The Working Group estimated that approximately 93,600 people who received blood transfusions before September 1991 were still alive in 2015, of whom approximately 100 had acquired HCV infections and roughly 32 remained undiagnosed — a ratio of approximately 1 in 3,000 among untested transfusion recipients (Short-life working group progress report, Scottish Government, September 2016).
- The Working Group assessed and rejected retrospective donor testing (estimated cost £8-10 million, 6-7+ years), record interrogation, population notification, and general screening as impractical or disproportionate given the small number of undiagnosed cases (Short-life working group progress report, Scottish Government, September 2016).
- The Working Group unanimously recommended three actions: a targeted awareness campaign for pre-1991 transfusion recipients, direct outreach to approximately 71 plasma product recipients not yet tested, and a Chief Medical Officer letter to clinicians highlighting HCV risk factors and treatment advances (Short-life working group progress report, Scottish Government, September 2016).
- In October 2016, the Scottish Government launched the awareness campaign, distributing approximately 400,000 posters and leaflets across GP surgeries, hospitals, care homes, pharmacies, and community buildings throughout Scotland, targeting people who received blood transfusions before September 1991 (Infected blood awareness, Scottish Government, October 2016).
- Health Protection Scotland analysis showed that in the three months following the Penrose Report's publication in March 2015, HCV testing referencing blood transfusion risk increased from 7 tests in 12 weeks before publication to approximately 400 tests in the same period — extrapolated to approximately 1,000 additional tests across Scotland (Short-life working group progress report, Scottish Government, September 2016).
- In May 2024, the First Minister made a statement in the Scottish Parliament apologising to victims of the infected blood scandal (Statement on infected blood, Scottish Government, May 2024).
How was this evidence gathered?
Evidence searched by Claude (Anthropic) on 10 Apr 2026
Checked data held on this site (government responses, progress updates, independent evidence)
Jurisdiction
Scotland
Response
Accepted
Accepted Scottish Government
25 Mar 2015

No formal government response published. Scottish Government established Short-Life Working Group with Health Protection Scotland and Scottish National Blood Transfusion Service to implement testing programme.

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Progress Timeline
Official Report
31 Dec 2015

Testing programme established. Note: The UK-wide Infected Blood Inquiry (2024) subsequently made broader recommendations covering compensation and systemic reforms.

Source
Report The Penrose Inquiry Final Report 25 Mar 2015
Responsible Bodies
Scottish Government Primary
Recommendation age 11.2 yrs
Last formal update 3804 days ago