Charity Funding for Patient Advocacy
That the following charities receive funding specifically for patient advocacy: the UK Haemophilia Society; the Hepatitis C Trust; Haemophilia Scotland; the Scottish Infected Blood Forum; Haemophilia Wales; Haemophilia Northern Ireland; and the UK Thalassaemia Society.
- The Government stated in December 2024 that funding totalling £500,000 would be provided to the charities named by the Inquiry: the Haemophilia Society, the Hepatitis C Trust, and the UK Thalassaemia Society, to be distributed across all named charities including devolved nation organisations (Government Response to the Infected Blood Inquiry, Cabinet Office, December 2024).
- No independent confirmation that the £500,000 has been distributed to all named charities has been identified in published reports to March 2026.
How was this evidence gathered?
Response
Accepted
Response
AcceptedUK Government
In relation to 10a) ii., funding totalling £500k will be provided to the charities named by the Inquiry; the Haemophilia Society, The Hepatitis C Trust and the UK Thalassaemia Society, to support their valuable patient advocacy work. Meetings are being held with these charities to go through the grants process and the next steps for agreeing awards to the individual charities.
Scottish Government
In relation to recommendation 10a) ii., the Scottish Government has agreed grant funding for both Haemophilia Scotland and the Scottish Infected Blood Forum for 2025-26, which will particularly support patient advocacy work by the charities.
Welsh Government
On 10a) ii., the Welsh Government continues to work with Haemophilia Wales to scope the future advocacy requirements for those infected and affected.
Published Evidence
Published assessments of progress from inspectorates, select committees, official progress reports, and other sources. Source type badge indicates whether each assessment is independent or government self-reported.
As of 13 January 2026: 3,721 people asked to start claims, 3,546 begun process, 3,074 received offers totalling £2.47bn, 2,861 paid totalling £1.89bn. Third compensation regulations in force 31 December 2025.
View detailed findings
IBCA exceeded initial expectations. Three sets of regulations now in force covering infected persons, affected persons, and supplementary routes. £11.8bn committed in October 2024 Budget. Independent review found "very creditable progress."