Fifth Report - The treatment of autistic people and people with learning disabilities
Select Committee
Health and Social Care Committee
HC 21
13 July 2021
Government response
The treatment of autistic people and people with learning disabilities: Government Response to the Committee’s Fifth Report of Session 2021–22 · published 27 Jul 2022
Recommendations & Conclusions
20 results
1
Conclusion
Acknowledged
Para 23
Autistic people and people with learning disabilities have the right to live independent, free and...
Conclusion
Autistic people and people with learning disabilities have the right to live independent, free and fulfilled lives in the community and it is an unacceptable violation of their human rights to deny them the chance to do so. It is …
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Government Response Summary
The government agrees with the importance of community support, acknowledges the funding complexity, and outlines current spending initiatives for people with learning disabilities and autistic people.
Department of Health and Social Care
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2
Recommendation
Not Addressed
Para 24
We recommend that the Department of Health & Social Care provides us with a complete...
Recommendation
We recommend that the Department of Health & Social Care provides us with a complete assessment of the cost of providing community support for all autistic people and people with learning disabilities currently in inpatient units. Alongside this, an assessment …
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Government Response Summary
The government states it is difficult to provide a complete assessment of community support costs and matching investment due to varied funding, highlights existing spending, but does not commit to the specific assessment or matching investment as recommended.
Department of Health and Social Care
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3
Recommendation
Accepted
Para 25
We also recommend that the Department then needs to redesign the financial incentives in the...
Recommendation
We also recommend that the Department then needs to redesign the financial incentives in the healthcare system so that local authorities do not seek to ‘offload’ autistic people and people with learning disabilities onto the NHS or place these individuals …
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Government Response Summary
The government accepts the recommendation, agreeing to redesign incentives by working to change the law to make local authorities and health services responsible for community support, improve housing, and ensure high-quality local support options.
Department of Health and Social Care
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4
Conclusion
Not Addressed
Para 42
Since the Winterbourne View scandal, over 10 years ago, successive governments have committed to reducing...
Conclusion
Since the Winterbourne View scandal, over 10 years ago, successive governments have committed to reducing the number of autistic people and people with learning disabilities in inpatient settings and prioritising community support for these individuals. However, missed and delayed policy …
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Government Response Summary
The government provides a generic response about the importance of mental health treatment and quality of care, which does not directly address the committee's conclusion regarding missed policy targets or the reasons for extended stays in Assessment and Treatment Units.
Department of Health and Social Care
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5
Conclusion
Not Addressed
Para 43
While we welcome the vision set out by Helen Whately MP (Minister of State, Department...
Conclusion
While we welcome the vision set out by Helen Whately MP (Minister of State, Department of Health & Social Care), we believe this is a matter of delivery and The treatment of autistic people and people with learning disabilities 39 …
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Government Response Summary
The government's response addresses a different suggestion regarding inadequate CQC-rated hospitals, and therefore does not engage with the committee's conclusion about The Building the Right Delivery Support Group.
Department of Health and Social Care
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6
Recommendation
Accepted in Part
Para 54
The Trieste model of care—characterised by simplified and quicker admissions to and discharges from inpatient...
Recommendation
The Trieste model of care—characterised by simplified and quicker admissions to and discharges from inpatient facilities; limited number of individuals in inpatient facilities for lengthy durations; and emphasis on well-resourced community support—presents a clear and better alternative to supporting autistic …
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Government Response Summary
The government agrees in principle with the recommendation for less restrictive care, stating it is already taking steps to ensure robust reporting of restrictive practices and emphasising therapeutic inpatient care. It highlights existing legislation like the Use of Force Act and notes CQC is improving its monitoring of restraint.
Department of Health and Social Care
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7
Recommendation
Rejected
Para 55
We recommend that the Trieste model of care is implemented for autistic people and people...
Recommendation
We recommend that the Trieste model of care is implemented for autistic people and people with learning disabilities by the Department of Health & Social Care and NHS England & Improvement. All new long-term admissions of such people to institutions …
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Government Response Summary
The government rejects the recommendation to ban long-term admissions and implement the Trieste model, stating it does not want to prevent necessary mental health hospital admissions but aims for shorter stays and increased community support.
Department of Health and Social Care
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8
Recommendation
Accepted in Part
In pursuing that policy, we recommend that by the end of 2021 the Department and...
Recommendation
In pursuing that policy, we recommend that by the end of 2021 the Department and NHS England & Improvement: i) introduce weekly formal reviews of the suitability of admission for all autistic people and people with learning disabilities who have …
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Government Response Summary
The government accepts some parts of the recommendation, agreeing to regular checks (while noting existing reviews), that people should not be in hospital due to lack of community provision, and to remove the definition of autism as a mental health illness in forthcoming legislation.
Department of Health and Social Care
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9
Recommendation
Accepted in Part
Furthermore, we recommend that autistic people and people with learning disabilities should never be admitted...
Recommendation
Furthermore, we recommend that autistic people and people with learning disabilities should never be admitted to an inpatient facilities that has received an “inadequate” rating from the Care Quality Commission (CQC). The Department for Health & Social Care must bring …
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Government Response Summary
The government agrees in part, stating the NHS will take action to avoid admissions to CQC-rated "inadequate" facilities but notes rare exceptions may occur, and commits to ensuring patient and family involvement in such decisions.
Department of Health and Social Care
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10
Recommendation
Accepted
Para 74
We welcome the Government’s announcement that it will bring into force the Mental Health Units...
Recommendation
We welcome the Government’s announcement that it will bring into force the Mental Health Units (Use of Force) Act 2018 in November 2021. This will go some way to reducing the use of restricted practices in inpatient facilities. However, we …
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Government Response Summary
The government states it already publishes monthly information on the use of force, exceeding the recommendation for twice-yearly publication, and notes that individuals and families should be involved in understanding incidents of force.
Department of Health and Social Care
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11
Conclusion
Not Addressed
Para 81
Inpatient facilities do not consistently meet the needs of autistic people and people with learning...
Conclusion
Inpatient facilities do not consistently meet the needs of autistic people and people with learning disabilities and too often this is because of factors such as the unnecessary use of restrictive practices; inpatient facilities being unable to accommodate individuals’ needs …
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Government Response Summary
The government's response addresses a different suggestion regarding investigating deaths, and therefore does not engage with the substance of the committee's conclusion about why inpatient facilities fail to meet the needs of autistic people and people with learning disabilities.
Department of Health and Social Care
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12
Recommendation
Rejected
Para 82
We recommend that, in addition to the implementation of the Mental Health Units (Use of...
Recommendation
We recommend that, in addition to the implementation of the Mental Health Units (Use of Force Act) (i.e. ‘Seni’s Law’), all Assessment and Treatment Units (ATUs) are closed within two years and replaced with person-centred services that are: i) designed …
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Government Response Summary
The government rejects the recommendation to close all Assessment and Treatment Units (ATUs) within two years, instead stating the importance of mental health treatment places and ensuring quality of care.
Department of Health and Social Care
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13
Conclusion
Accepted
Para 90
We have significant concerns about the quality of training and support provided to staff working...
Conclusion
We have significant concerns about the quality of training and support provided to staff working in inpatient facilities and the negative consequences this can have on the treatment of autistic people and people with learning disabilities in inpatient facilities. While …
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Government Response Summary
The government agrees with the importance of proper staff training and states they are starting new training programmes for health and care staff, including better training for those working in mental health hospitals.
Department of Health and Social Care
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14
Recommendation
Accepted in Part
Para 91
We recommend that staff involved in the treatment of autistic people and people with disabilities...
Recommendation
We recommend that staff involved in the treatment of autistic people and people with disabilities in inpatient settings receive training in care planning which has a clear and unhindered focus on: i) understanding that autistic people and people with learning …
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Government Response Summary
The government accepts the need for better staff training, stating they are starting new programmes, but indicates that not all staff will complete the training by the recommended April 2023 deadline.
Department of Health and Social Care
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15
Conclusion
Accepted
Para 93
We conclude that the benefits of early diagnosis for conditions like autism are well- understood...
Conclusion
We conclude that the benefits of early diagnosis for conditions like autism are well- understood and late diagnosis presents a particular risk that autistic people will end up with mental illnesses such as anxiety and/or depression.
Government Response Summary
The government agrees with the conclusion, stating it is already working to improve autism diagnosis by adhering to NICE guidelines for waiting times and investing money in autism checks.
Department of Health and Social Care
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16
Recommendation
Accepted
We recommend that the Government analyses the speed at which autism is diagnosed especially in...
Recommendation
We recommend that the Government analyses the speed at which autism is diagnosed especially in children and young people, and puts in place a strategy to increase early diagnosis with measurable outcomes by the end of the financial year 2021–22. …
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Government Response Summary
The government agrees with the recommendation but states it is already working on increasing early autism diagnosis by adhering to NICE guidelines for waiting times and investing in autism checks.
Department of Health and Social Care
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17
Recommendation
Rejected
Para 102
The physical health and wellbeing of autistic people and people with learning disabilities requires greater...
Recommendation
The physical health and wellbeing of autistic people and people with learning disabilities requires greater prioritisation. We believe that the creation of an Intellectual Disability Physician to co-ordinate care in line with the model established in the Netherlands should be …
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Government Response Summary
The government has looked into creating an Intellectual Disability Physician role but is concerned about potential negative effects, opting instead to focus on training all doctors to work with autistic people and those with learning disabilities.
Department of Health and Social Care
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18
Recommendation
Rejected
Para 103
We recommend that the Department and NHS England & Improvement undertake an assessment of the...
Recommendation
We recommend that the Department and NHS England & Improvement undertake an assessment of the merits of establishing the Intellectual Disability Physician as a new professional discipline within the NHS with the objective of reducing admissions 42 The treatment of …
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Government Response Summary
The government has considered assessing a new Intellectual Disability Physician role but rejects it due to concerns about potential negative effects, preferring to focus on training all doctors to work with autistic people and those with learning disabilities.
Department of Health and Social Care
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19
Recommendation
Rejected
Para 110
In recent years there have been too many incidences of autistic people and people with...
Recommendation
In recent years there have been too many incidences of autistic people and people with learning disabilities dying in inpatient settings. Families and friends have too often had to go to extreme and difficult lengths to have independent reviews into …
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Government Response Summary
The government rejects the recommendation for mandatory independent reviews of deaths, stating they already look into reasons for deaths in mental health hospitals with appropriate local involvement.
Department of Health and Social Care
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20
Recommendation
Rejected
We therefore recommend that the Government and NHS England & Improvement bring forward the necessary...
Recommendation
We therefore recommend that the Government and NHS England & Improvement bring forward the necessary financial and workforce resources required to mandate the independent review of the deaths of all autistic people and people with learning disabilities in inpatient and …
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Government Response Summary
The government rejects the recommendation to mandate an independent review of all deaths, stating they already investigate deaths of people with learning disabilities and autistic people in mental health hospitals locally.
Department of Health and Social Care
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