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Kate Burt, Chief Executive of the Haemophilia Society, told us that Government could have avoided...

Conclusion
Kate Burt, Chief Executive of the Haemophilia Society, told us that Government could have avoided problems experienced by the Infected Blood Compensation Scheme if it had early engagement with affected communities – before the scheme launched.37 She said that the Infected Blood Compensation Scheme was designed without victim involvement and stressed that co-design with victims is critical.38 Reverend Clive Foster also told us it is critical that impacted groups are involved in designing schemes from the outset, and that design is aligned with trauma-informed principles that consider how the claim process can be retraumatising for people. 33 C&AG’s report, Paras 2.7 & 2.8 34 C&AG’s report, Para 2.9 and 2.13 35 C&AG’s report, Para 1.19 36 Q81 37 Q9 38 Q16 18 Sir Alan Bates similarly stressed the importance of engaging victims and their representatives in designing schemes and processes and told us of his experience of co-design with DBT on the Horizon Group Litigation Order Scheme. Sir Alan said DBT had seemed to consider victims’ perspectives during co-design sessions, but despite this, the scheme then ended up looking very different to what was discussed.39 Shaila Pal went further by telling us that, not only should affected communities be involved in the design of schemes, but they should also receive funded legal advice to support them to engage in co-design.40
Addressee Bodies
HM Treasury
Timeline
Report published 09 Sep 2026