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Bedfordshire Hospitals NHS Foundation Trust

P-002013 · Report · Decision date: 30 June 2023 · View Bedfordshire Hospitals NHS Foundation Trust scorecard
Complaint (AI summary)
Mrs C complained the Trust discharged Mr J while he was clinically dehydrated and immobile, leading to distress and readmission. She also cited poor communication of his condition to the family.
Outcome (AI summary)
Complaint partly upheld. The Trust failed to communicate Mr J’s discharge needs properly, causing distress. However, the discharge decision itself was not found to be wrong.

Full decision details

The Complaint

5. Mrs C complains about the Trust’s discharge planning and the discharge of Mr J from a ward in January 2021.

6. Mrs C says the Trust discharged Mr J when he was clinically dehydrated and could not move. She says this caused unnecessary distress and discomfort for him and the family and resulted in his readmission by ambulance less than 24 hours later.

7. Mrs C also complains the Trust did not communicate Mr J’s clinical condition to the family either verbally or in a written discharge summary. She says this meant the family were unaware of his needs, his overall frailty, or the moisture lesion he had developed while admitted (a moisture lesion is a sore patch of skin that happens when skin is wet for long periods).

8. Mrs C says because of this the family could not give Mr J appropriate care or advise emergency staff accurately on his condition. She says this was both distressing and embarrassing for them all.

9. To resolve her complaint Mrs C wants the Trust to accept all its failings, to apologise for these and make service improvements to prevent them happening again.

Background

10. Mr J had begun to feel very unwell around 8 November 2021. He also had a swelling in his arm and had lost about a stone and a half in weight. His GP ordered blood tests and on 31 December after receiving the results, they advised him to go to the Trust’s A&E.

11. Mr J attended A&E and the Trust admitted him to a ward. On 1 January 2022 the Trust told him it suspected he had cancer. The Trust recorded Mr J wanted to wait for scan results to confirm the diagnosis before telling his family.

12. On 2 January the Trust recorded lymphoproliferative disease (a condition affecting the blood) and it referred Mr J to its oncology department.

13. The next morning, the Trust’s on call haematology consultant (a specialist in blood disorders) assessed him. They suspected lymphoma (a cancer of the lymph nodes which are part of the body’s immune system) and told Mr J the diagnosis would be confirmed by the tests they had ordered, which included a biopsy.

14. They also explained they would take over his care and prescribed a course of steroids to manage Mr J’s arm swelling. The haematologist stressed the biopsy was critical for his diagnosis.

15. Mr J had the biopsy on 4 January and the Trust ordered a follow up diagnostic CT scan.

16. On 6 January ward staff chased the haematology department to see if the CT scan could be done sooner. The haematology department could not complete the scan immediately. Instead, it reviewed Mr J the next day and said he could be discharged after the five-day course of steroids, if the steroids had reduced the swelling and his pain was under control. The scan could then be completed as an outpatient appointment.

17. On 7 January the ward doctor recorded Mr J as clinically stable and independent. Later that day a physiotherapy assessment found him fit for discharge. Ward staff made plans to discharge him the next day.

18. On 8 January Mr J unexpectedly fell on the ward. Staff ordered an immediate CT head scan and bloods tests. This delayed his discharge, but further records noted Mr J seemed well to ward staff.

19. After further clinical and therapy assessments, the Trust discharged Mr J at around 7.30pm on 9 January.

20. Mrs C says when she collected Mr J the Trust did not give the family any information about his needs. She also explained they struggled to get him into the car and then into his home.

21. Once at home Mrs C told us Mr J could not move and slept in a chair, urinating into a bottle. At around 3pm the next day Mr J was taken back to hospital by ambulance.

22. The Trust gave immediate IV (intravenous – through the veins) fluid and readmitted him. Sadly, Mr J died shortly after this.

Findings

Fitness for discharge

26. Discharge guidance sets out a number of points for clinical staff to consider to reach a decision on if a patient is fit for discharged. It says clinician staff should consider if the patient: • needs high dependency care, oxygen therapy, IV fluids or IV medication or regular observations (NEWS above three). A NEWS (national early warning score) is a set of observations that are scored. A higher score shows the need for increased monitoring and a potential serious decline in health • has a reduced level of consciousness or acute functional impairment that could not be met with social care (acute functional impairment may be a physical or neurological condition or illness that prevents a patient from doing day to day activities) • is in the last hours of life • has had recent lower limb or abdominal surgery or had an invasive procedure with a risk of life-threatening deterioration.

27. The guidance says if a patient does not meet any of these criteria, then clinicians should consider discharge.

28. Mrs C says the Trust wrongly discharged her father when he was clinically dehydrated and could not move. We have looked more closely at Mr J’s records to decide if the Trust properly assessed and treated Mr J’s levels of hydration and mobility before it considered his fitness for discharge.

Hydration

29. Dehydration happens when the body loses more fluid than it can take in. NICE guidance explains how to assess if a patient is dehydrated and when to give fluid intervention (IV fluids). If Mr J had been having IV fluids, he could not have been discharged.

30. The guidance says clinical examination should include an assessment of the patient's fluid status, including their pulse, low or high blood pressure, capillary refill and fluid retention (swelling). It explains this can be monitored through NEWS, fluid balance charts and weight recording. The guidance also suggests laboratory investigations including a full blood count.

31. Records show the Trust examined Mr J on admission and took his blood pressure, pulse, capillary refill and blood tests including a full blood count and kidney function. His blood pressure was 127/79, pulse was 89 and his respiratory rate was recorded as 18. These were all within normal ranges.

32. The Trust weighed Mr J and it completed daily food charts which showed he was eating and drinking at mealtimes. Nursing notes from 1 to 9 of January 2022 say he was eating and drinking independently.

33. There are limited monitoring observations. Clinical notes from 31 December 2021 show Mr J needed hydration, and on 6 January 2022 the doctor recorded the lining of Mr J’s mouth was dehydrated. There are also several references to oedema (swelling caused by fluid retention) and a swelling in his left lower limb.

34. Observations recorded on 4, 5, 6, 8 and 9 January 2022 show Mr J’s heart rate and blood pressure stayed within normal ranges. His swelling was found to be linked to his unconfirmed cancer diagnosis.

35. We asked our adviser if these were signs of clinical dehydration showing a need for IV fluids. They confirmed in their experience there was no need to give IV fluids to Mr J.

36. The Trust did not complete fluid balance charts. It said this is because Mr J was eating and drinking independently, so they were not needed.

37. GMC guidance says doctors must assess a patient’s condition properly. We also asked our adviser if fluid charts were needed to assess and treat Mr J.

38. Our adviser explained a fluid balance chart is not needed for every patient. They said in their experience they are only needed when patients are significantly dehydrated or known to not be drinking well.

39. Taking this information into account we can see the Trust did the right sort of assessments of Mr J’s hydration levels throughout his admission. This was in line with NICE and GMC guidance.

40. Some assessments showed signs of dehydration and there was not always the frequency of assessments we would expect to see. But we are satisfied there is enough information to show a picture of Mr J’s condition. Based on this, we are satisfied he did not have a clinical need for IV fluids before his discharge.

41. We recognise on readmission this had changed and the Trust gave IV fluids almost immediately. We also listened to the condition Mrs C described Mr J being in on transfer to the car and at home. Mrs C told us she spoke to a matron who said she should have wheeled Mr J straight back to A&E.

42. Given this conversation and the fact there were only around 20 hours between Mr J’s discharge and his readmission, we appreciate and understand Mrs C’s concerns.

43. We looked at the symptoms which led to the Trust giving IV fluid on readmission. They included an increased respiratory rate of 32, blood pressure of 112/59 (hypotension or low blood pressure) and a high heart rate of 126.

44. These results were a significant change from the last observations taken at 2.40pm after Mr J’s fall and shortly before his discharge. At that time, Mr J had a respiratory rate of 18, blood pressure of 148/79 and heart rate of 84.

45. We are very sorry to see how Mr J deteriorated after his discharge. Taking account of all the evidence we can see Mr J declined greatly and this appeared to happen quickly. When we look at the information available to the Trust at the time of discharge, this does not change our view on the Trust’s assessment of Mr J’s hydration needs.

Mobility

46. Mrs C says her father could not move into the car and the family had to physically lift him. She also explained when he arrived home he could not move from the chair and had to urinate into a bottle and sleep in a chair overnight. We can appreciate how difficult this must have been for them.

47. The Trust said the consultant and the therapy team reviewed Mr J before his discharge and they noted no concerns about his mobility. It also explained Mr J walked to the wheelchair on the ward when he was being discharged, and there were no concerns Mr J could not go to the toilet independently at home.

48. Discharge guidance says an acute functional impairment may suggest a patient is not ready for discharge.

49. An support worker saw Mr J on 4, 7 and 8 January 2022. The first time they found him to be mobile without assistance and independent with activities of daily living (this description includes activities likes eating, washing, dressing).

50. On the second visit they recorded that he was mobilising independently around the bed area. On 8 January after his fall, they saw he was moving independently without help.

51. On 9 January before his discharge, a physiotherapist and an occupational therapist reviewed Mr J. They recorded he was independently mobile and steady walking, and he did not have any therapy needs.

52. The records show regular assessment of Mr J before and after his fall with no signs of an acute functional impairment. There is no evidence in the records that shows his discharge was not in line with the discharge guidance.

53. We recognise there is a clear difference between Mrs C’s account of her father after discharge and the Trust’s assessment hours earlier. We do not question the accuracy of Mrs C’s account. Unfortunately, we cannot say why Mr J’s condition was so different.

54. We cannot see the Trust was aware of this difference at the time. Had the Trust known of the difficulties the family faced transferring Mr J to the car, this would have prompted further assessment.

55. In its complaint response the Trust said a more experienced member of staff could have identified Mr J’s deterioration if they helped him to the car. We recognise this supports Mrs C’s view that the Trust did not do enough.

56. We use guidance to help us decide if what went wrong falls so far below the expected standard to mean it was a failing.

57. In this case there is no guidance that says a more experienced member of staff should help a patient when they have been discharged. For this reason, we cannot go as far as to say there was a failing in the Trust’s actions.

58. We realise if the Trust had done what it said, this could have a made a difference to its decision to discharge Mr J at that time. We appreciate this is difficult for the family to know, as it may have helped avoid the distress of the next hours.

Conclusions

59. Mr J’s records show the Trust assessed his hydration levels and mobility in line with guidance. They did not show a need for IV fluids or an acute level of functional impairment.

60. When we consider the records and the information available to the Trust at the time of discharge, the Trust’s decision was in line with the relevant guidance. For this reason, we have seen no failings in this part of the complaint.

61. We are very sorry to hear of Mrs C’s experience and recognise the lasting impact those hours had on her, her father and the family. We realise this was not the outcome she was hoping for, particularly given the Trust’s response. We hope she is reassured by the thorough consideration we have given to the records and her experience.

Communication on discharge

62. Mrs C complains the Trust did not communicate her father’s clinical condition to the family, either verbally or in a written discharge summary. She says he was handed over to them in a wheelchair by a student nurse who did not have the ability to assess him.

63. Discharge guidance says the individual and their family should be given relevant information about the discharge. NMC guidance also says nurses should keep clear and accurate records, check people’s understanding and communicate effectively.

64. There is a document in Mr J’s records called nursing assessments and care planning. Pages 37 and 38 contain a discharge checklist. This includes a section confirming staff have discussed the discharge with the patient and their family, they have fully explained medication needs and wound care and any pressure-relieving equipment had been discussed and ordered. The Trust did not complete this document. There is no explanation for this.

65. Nursing notes show Mr J had blanching skin (when the skin goes white because of restricted blood flow) on arrival. By 3 January 2022 he had developed a moisture lesion. This was still there on 6 January but not recorded in the days after.

66. On 8 January ward staff contacted his Mrs J by phone to discuss Mr J’s discharge and then again on 9 January when it was rearranged after his fall. There is no evidence in these notes to show ward staff discussed Mr J’s medication or pressure needs.

67. The Trust told us ward staff are confident Mr J’s discharge letter was in his medication bag and it included the relevant information.

68. We cannot confirm this as the family did not get the letter. We also note the discharge letter on record did not include information about the moisture lesion and it also included confidential information about his unconfirmed cancer diagnosis that Mr J had asked the Trust not to share.

69. For these reasons, it is our view the Trust did not act in line with the discharge guidance and NMC guidance. This is because it did not complete the relevant paperwork to show it fully communicated Mr J’s discharge needs to him or his family. As Mrs C and the family did not get this information, this was a failing.

Impact of this failing

70. Mrs C says the poor communication meant the family were unaware of her father’s needs, his overall frailty or of the moisture lesion he had developed.

71. She says because of this the family could not give Mr J appropriate care or advise emergency staff accurately on his condition. She says this was both distressing and embarrassing for them all.

72. Mrs C told us about the shock and upset caused when Mr J suddenly died and realised that his last hours at home had been spent in such an uncomfortable and undignified way. She explains this had had a lasting effect on the family.

73. Mrs C also explained the embarrassment for the whole family at being unable to clearly communicate his needs and condition to emergency staff the next day.

74. We can see the family were confused and upset by Mr J’s condition. We recognise this increased as they did not understand his needs. Had the Trust clearly communicated Mr J’s needs, it is likely the family could have supported him better and this would have significantly reduced this distressing time for him and the family.

75. Records show when Mr J was readmitted the Trust documented his moisture lesion as grade two. This is where there is skin loss and blistering. We recognise the progression of this wound would have been painful for him. We also appreciate it would have been difficult for the family to witness and to find this out from emergency staff.

76. As part of its complaint investigation the Trust apologised about the way it handed over Mr J’s information. It also explained it has since discussed the handover with the staff involved.

77. The Trust repeated to us that it had spoken at length to the member of staff involved who has reflected on their actions.

78. We recognise the Trust has taken some steps to address the failings we have found. We have seen failings in the Trust’s documentation as well its communication with the family. Our findings go further than the issues the Trust recognised during its own investigation.

79. It is not clear to us that the Trust has recognised the full impact of the failings we have seen, or explored this with all the staff who may have been responsible for completing the paperwork. We have made recommendations about what the Trust should do to put this right below.

Our Decision

1. The Parliamentary and Health Service Ombudsman has carefully considered Mrs C’s complaint about her father’s, Mr J, discharge from the Trust. We thank her for discussing her concerns with us. We appreciate how distressing the events were for her and her family.

2. We partly uphold this complaint. We found the Trust did not communicate Mr J’s needs at discharge in line with the relevant guidance. This caused avoidable distress and embarrassment for him and the family.

3. We do not fully uphold this complaint because we have not seen any evidence that the Trust’s decision to discharge Mr J was not in line with the evidence available to it at the time. The decision to discharge was also in line with the relevant guidance.

4. We recommend the Trust writes to Mrs C to apologise for the distress and to accept the failings it has not already identified. We also recommend the Trust writes an action plan to explain how it will prevent those failings from happening again.

Recommendations

80. In considering our recommendations, we have referred to our ‘Principles for Remedy’. These state that where poor service or maladministration (fault) has led to injustice or hardship, the organisation responsible should take steps to put things right.

81. Our Principles say that organisations should look for continuous improvement and use the lessons learned from complaints to make sure they do not repeat maladministration or poor service.

82. In line with this, we recommend the Trust should accept and apologise for not completing the discharge paperwork and for not making sure that Mr J and his family had a clear understanding of his overall frailty and needs on discharge, specifically in relation to his medication and moisture lesion.

83. This was distressing and embarrassing for him and the family in the next 24 hours. That experience was made worse by the family’s loss and knowing that Mr J’s last hours in his home and the family’s memories of those hours was unpleasant.

84. The Trust should do this within one month of the date of our final report.

85. The Trust should also set out exactly what it has done, or will do, to prevent the failing happening again. This should include details of who is responsible for the action and when it will be completed by. It should draft this action plan and share it with us within two months of our final report.

86. We appreciate how important Mrs C’s complaint is to her and her family, particularly her mother. We hope our investigation and report help address her remaining concerns.

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