Palliative care data gaps

Lack of a specified palliative and end-of-life care data set, hindering integrated care boards from understanding population needs.

4 items 1 source 4 inquiries
Source spread

Where this theme appears

Palliative care data gaps has been flagged across 1 independent accountability source:

4 inquiry recs

This theme has been identified in one data source. As more data is added, cross-references may emerge.

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Source-grouped records are useful for tracing where a concern came from. Large sections show the 50 strongest matches for that source; counts still show the full theme total.

36 — Research into child sexual abuse
Orkney Inquiry
Recommendation: Research should be urgently undertaken into all forms of child sexual abuse and in particular cases of multiple abuse and into the provision of personal social services in the islands authorities and the less populated areas of Scotland (15.84-88).
Unknown
R71 — National CDI death monitoring
Vale of Leven Inquiry
Recommendation: Scottish Government should identify a national agency to undertake routine national monitoring of deaths related to CDI.
Words of: Scottish Government, The Scottish Government's Response to the Vale of Leven Hospital Inquiry Report, section 1.3, 18 June 2015
Gov response: The Scottish Government accepts its responsibility for the failings identified in the report and we apologise unreservedly for the suffering and loss caused. We accept in full all of the report's recommendations.
Accepted
38 — Improve perinatal mortality recording
Morecambe Bay Investigation
Recommendation: Mortality recording of perinatal deaths is not sufficiently systematic, with failures to record properly at individual unit level and to account routinely for neonatal deaths of transferred babies by place of birth. This is of added significance when maternity units …
Words of: Department of Health, Learning not blaming (Cm 9113), government response to the Morecambe Bay Investigation and two other reports, July 2015
Gov response: 103. We accept this recommendation. We will explore the feasibility of publishing data about the safety and quality of maternity services at individual Trust level. 104. As recommended by the Morecambe Bay Report, MBRRACE-UK has …
Accepted
IR2-5 — Classification of Infections and Severity
Infected Blood Inquiry
Recommendation: I recommend that infections eligible for compensation should be classified in the following manner: a) there should be defined categories for each type of eligible infection, and the stages through which it progresses, and for each category defined degrees of …
Words of: UK Government, Full Government Response to the Infected Blood Inquiry's May 2024 Report (CP 1318), presented to Parliament by the Minister for the Cabinet Office, 14 May 2025
Gov response: The Government recognises the different levels of suffering from different infections and degrees of severity. Therefore, compensation will be available for all of the categories of loss recommended by the Inquiry - these are referred …
Accepted