No person-centred care
Failure to ensure the provision of truly person-centred care that meets individual needs, preferences, and promotes dignity.
107 items
1 source
10 inquiries
Strongest theme matches
Mixed across source types and ranked by classifier confidence plus text match strength.
Inquiry recommendation
99match
R100 - Person-centred day activities and supported employment
Trusts, private and 3rd sector care providers must ensure that person-centred day activities (including supported employment where appropriate) should be available and offered to all people with learning disabilities and autistic people. This should be monitored through Trust delivery plans.
Matched on
terms: care, centred, person
Inquiry recommendation
99match
R12 - Person-centred care plans with family involvement
Care plans must be live, person-centred documents. This requires joint ownership with people with learning disabilities and their families rather than simply professional records. While professionals necessarily lead assessments, families should be actively involved in identifying needs. Resulting care plans should be shared with the service user themselves (where appropriate) and families, who should be able to challenge...
Matched on
terms: care, centred, person
Inquiry recommendation
82match
R5 - Named person for care plans
Any service user with a learning disability should have a named person (a key individual) responsible for their care plans and this person should be involved in and record the discussion with the family and the discussion with any relevant MDT and sign off the final decision. (And see Recommendation 99 (R99) below.)
Matched on
terms: care, person
Inquiry recommendation
69match
BRIS-1 - Ensure patient involvement in all treatment and care decisions
In a patient-centred healthcare service patients must be involved, wherever possible, in decisions about their treatment and care.
Matched on
terms: care, centred
Inquiry recommendation
65match
BRIS-125 - Formulate national clinical standards from patient-centred perspective, based on best evidence.
National standards of clinical care should reflect the commitment to patient-centred care and thus in future be formulated from the perspective of the patient. The standards should address the quality of care that a patient with a given illness or condition is entitled to expect to receive from the NHS. The standards should take account of the best...
Matched on
terms: care, centred
Inquiry recommendation
62match
R86 - PCC information on quality of care standards
The PCC should support service users/families and provide information on what constitutes good quality care for people with learning disabilities and autistic people, and how to spot when care is falling short.
Matched on
terms: care
Inquiry recommendation
61match
BRIS-3 - Adopt patient-professional partnership model across all NHS healthcare settings
The notion of partnership between the healthcare professional and the patient, whereby the patient and the professional meet as equals with different expertise, must be adopted by healthcare professionals in all parts of the NHS, including healthcare professionals in hospitals.
Matched on
terms: care
Inquiry recommendation
61match
IHRD-22 - Parental Knowledge in Care Plans
Clinicians should respect parental knowledge and expertise in relation to a child's care needs and incorporate the same into their care plans.
Matched on
terms: care
Inquiry recommendation
60match
R28 - Restraint Reduction Network principles
The Restraint Reduction Network identifies six principles to avoid the use of restrictive practice. While there is evidence that some Trusts have adopted these principles, further action is needed to ensure the principles are fully embedded. These principles must be embedded in policies and practices. The principles are: i. Organisational commitment – led by executive directors ii. Performance...
Matched on
terms: person
Inquiry recommendation
57match
BRIS-59 - Make communication skills education essential for all healthcare professionals
Education in communication skills must be an essential part of the education of all healthcare professionals. Communication skills include the ability to engage with patients on an emotional level, to listen, to assess how much information a patient wants to know, and to convey information with clarity and sympathy.
Matched on
terms: care
Inquiry recommendation
57match
R18 - Co-production processes and clinical audit
Specific processes rather than policies should be designed to ensure there is good communication with families and carers to ensure co-production takes place and is effective. Evidence of co-production should be an element of clinical audit of people’s healthcare records.
Matched on
terms: care
Inquiry recommendation
57match
R11 - Meaningful daily activities
Like anyone else, people with learning disabilities and autistic people require a variety of meaningful activities on a daily basis to enhance their quality of life. Every person should have an individualised activity schedule, including leisure activities and skill-building activities, and staff should be trained in ‘active support’ so that they can deliver this.
Matched on
terms: person
Inquiry recommendation
57match
F239 - Continuing responsibility for care
The care offered by a hospital should not end merely because the patient has surrendered a bed – it should never be acceptable for patients to be discharged in the middle of the night, still less so at any time without absolute assurance that a patient in need of care will receive it on arrival at the planned...
Matched on
terms: care
Inquiry recommendation
56match
F199 - Key nurses
Each patient should be allocated for each shift a named key nurse responsible for coordinating the provision of the care needs for each allocated patient. The named key nurse on duty should, whenever possible, be present at every interaction between a doctor and an allocated patient.
Matched on
terms: care
Inquiry recommendation
53match
R19 - Amend Quality Standards for shared decision-making
The 2006 Quality Standards for Health and Social Care should be amended to require HSC organisations to provide all people with learning disabilities, and if they lack capacity, their family or advocate, with the opportunity to share in all decision-making about their care plan, including assessments, treatment plans, evaluations of care and placements. The RQIA should include performance...
Matched on
terms: care
Inquiry recommendation
53match
BRIS-9 - Develop kitemarking system for reliable internet health information guidance for public
The public should receive guidance on those sources of information about health and healthcare on the Internet which are reliable and of good quality: a kitemarking system should be developed.
Matched on
terms: care
Inquiry recommendation
53match
BRIS-12 - Provide patients with information enabling active participation in their care decisions.
Patients must be given such information as enables them to participate in their care.
Matched on
terms: care
Inquiry recommendation
53match
BRIS-4 - Provide treatment and care information in varied forms, stages, and reinforced
Information about treatment and care should be given in a variety of forms, be given in stages and be reinforced over time.
Matched on
terms: care
Inquiry recommendation
52match
R51 - CCTV in non-public areas only in best interests
The installation of CCTV in non-public areas should be considered only where this will be in the best interests of the individual service user and following full consultation taking the views of relevant carers, service users (where possible) and relatives fully into account.
Matched on
terms: care
Inquiry recommendation
52match
R17 - Co-production training
Creating a co-produced care environment, where people with learning disabilities, families and professionals work collaboratively, requires a fundamental shift in practice. As well as organisational commitments, staff will need education and facilitation to transition to this way of working. Specific training in co-production should be designed and delivered to all those caring for people with learning disabilities and...
Matched on
terms: care
Inquiry recommendation
48match
R26 - Six-monthly financial accounts to families
Information about the use of cash and other property and six-monthly accounts (or such period as appropriate upon discharge of the person) should be available to the service user concerned where possible and to the family where appropriate. Where appropriate an Easy Read version should be made available.
Matched on
terms: person
Inquiry recommendation
48match
R25 - Accessible financial records
The records kept must be easy to manage by staff and easily comprehensible to others, including people with learning disabilities and autistic people, carers and relatives.
Matched on
terms: care
Inquiry recommendation
48match
R4 - Consultation before patient transfers
Prior to the decision to move a service user to a different facility there must be discussion with the staff regularly caring for them, the relevant multidisciplinary team (MDT), the person's family where practicable and the person themselves where possible, to consult with them about the potential move.
Matched on
terms: person
Inquiry recommendation
48match
BRIS-11 - NHS employers must ensure staff allow patients time for questions
Patients should always be given the opportunity and time to ask questions about what they are told, to seek clarification and to ask for more information. It must be the responsibility of employers in the NHS to ensure that the working arrangements of healthcare professionals allow for this, not least that they have the necessary time.
Matched on
terms: care
Inquiry recommendation
45match
BRIS-8 - NHS Modernisation Agency to prioritise patient information quality and establish accreditation system
The NHS Modernisation Agency should make the improvement of the quality of information for patients a priority. In relation to the content and the dissemination of information for patients, the Agency should identify and promote good practice throughout the NHS. It should establish a system for accrediting materials intended to inform patients.
Matched on
classifier match
Inquiry recommendation
44match
R38 - Clear pathways for raising concerns
People with learning disabilities and autistic people and their families should be provided with clear, written information outlining the available pathways for raising concerns. This information should clearly distinguish between an enquiry, a concern and a complaint. Individuals should then be asked to select the option that they feel best aligns with their needs. This selection should be...
Matched on
classifier match
Inquiry recommendation
44match
BRIS-5 - Tailor patient information to individual needs, circumstances, and wishes
Information should be tailored to the needs, circumstances and wishes of the individual.
Matched on
classifier match
Inquiry recommendation
44match
BRIS-60 - Include inter-professional engagement and respect in communication skills training
Communication skills must also include the ability to engage with and respect the views of fellow healthcare professionals.
Matched on
terms: care
Inquiry recommendation
44match
3 - Explaining independent sector differences
We recommend that the differences between how the care of patients in the independent sector is organised and the care of patients in the NHS is organised is explained clearly to patients, so that they understand how the engagement of their consultant, their practising privileges, their indemnity, and emergency and intensive care arrangements work.
Matched on
terms: care
Inquiry recommendation
41match
R90 - Regional standing committee of service users and families
A regional standing committee of people with learning disabilities and autistic people and their relatives should be established, to be consulted by the DoH and other bodies on services for learning disabilities and autistic people. This should be funded by DoH and potentially facilitated by the PCC. The participants in this committee should be reimbursed for taking part.
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classifier match
Inquiry recommendation
41match
R59 - CCTV explained in accessible format
All service users and their families should have the CCTV explained to them in easily understood language and with easy access materials, so that they are aware that it is for their protection, and so that they understand when it can be accessed and by whom.
Matched on
classifier match
Inquiry recommendation
41match
R21 - Human rights officer in learning disability services
All providers of learning disability services should appoint a human rights officer, as seen in Sheffield Health Partnership University NHS Foundation Trust and Greater Manchester Mental Health NHS Foundation Trust. This role should support staff and monitor the progress of the service towards a human rights-based, co-produced service.
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classifier match
Inquiry recommendation
41match
R20 - Independent advocacy for service users and families
Properly trained independent advocates should be made available to service users and families to support effective communication with staff and for raising concerns and complaints. DoH/SPPG should specify the level of advocacy services required for people with learning disabilities in the annual commissioning plan.
Matched on
classifier match
Inquiry recommendation
41match
BRIS-7 - Regularly update and pilot patient information materials with active patient involvement
Various modes of conveying information, whether leaflets, tapes, videos or CDs, should be regularly updated, and developed and piloted with the help of patients.
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classifier match
Inquiry recommendation
41match
BRIS-6 - Provide evidence-based patient information in a comprehensible summary format
Information should be based on the current available evidence and include a summary of the evidence and data, in a form which is comprehensible to patients.
Matched on
classifier match
Inquiry recommendation
40match
R29 - Psychology input to reduce restrictive practices
All facilities providing residential services for people with learning disabilities and autistic people should provide sufficient psychology input for each patient, to obviate the need for restrictive practices in all but the most exceptional circumstances.
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classifier match
Inquiry recommendation
40match
R11 - CDI severity awareness
Health Boards should ensure that patients, and relatives where appropriate, are made aware that CDI is a condition that can be life-threatening, particularly in the elderly.
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classifier match
Inquiry recommendation
36match
R52 - CCTV policies agreed with staff residents and families
Policies governing the use of CCTV should be agreed only after consultation with staff, residents and their families using the service.
Matched on
classifier match
Inquiry recommendation
36match
R46 - Lived experience feedback via external agency
Where people with learning disabilities can participate, the provider should actively seek their lived experience feedback in relation to staff attitudes and behaviours on a quarterly basis through an external and independent agency (perhaps to be undertaken by the PCC), and report this to a public part of a Board-level committee and also publish it on the provider’s...
Matched on
classifier match
Inquiry recommendation
36match
R39 - Guidance on recording and presenting concerns
People with learning disabilities and autistic people and their families should be provided with a short description of how best to record and present concerns so as to be effective.
Matched on
classifier match
Inquiry recommendation
36match
R37 - Human rights-based restrictive practices training
Education and training on the use of restrictive practices should be grounded in human rights principles and the dedicated human rights specialist appointed in accordance with Recommendation 21 (R21) should work with staff on this approach.
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classifier match
Inquiry recommendation
36match
R32 - Balanced performance measures including restrictive practices
HSCTs should implement a comprehensive set of balanced performance measures across all services for people with learning disabilities, including those commissioned from third-party providers. These measures should include: Trends in the use of restrictive practices; Trends of aggressive behaviour incidents, including peer-on-peer aggression and patient-on-staff aggression; Positive experience, including quality of life measures.
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classifier match
Inquiry recommendation
36match
R22 - Easy Read documents
All documents relevant to the service user’s experience and intended for their information must be made available in Easy Read format.
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classifier match
Inquiry recommendation
36match
R7 - Independent living skills focus
While patients remain in hospital pending resettlement, there should be a focus on enhancing their independent living skills, tailored to their physical and mental capacity.
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classifier match
Inquiry recommendation
36match
4 - Reflection period for consent
We recommend that there should be a short period introduced into the process of patients giving consent for surgical procedures, to allow them time to reflect on their diagnosis and treatment options. The GMC should monitor this as part of Good Medical Practice.
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classifier match
Inquiry recommendation
36match
R84 - Learning disability service culture measure
RQIA needs to consider adopting a measure of service culture specific to learning disability services for use in its inspections. Such measures have already been developed for learning disability residential settings.
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classifier match
Inquiry recommendation
36match
WATE-(5) - Ensure all decisions regarding abused children are made in their best interests
Any decision about the future of a child who is alleged to have been abused should be made in that child's best interests. In particular, the child should not be transferred to another placement unless it is in the child's best interests to be transferred.
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classifier match
Inquiry recommendation
36match
R21 - Nursing staff for relatives
Health Boards should ensure that a member of nursing staff is available to deal with questions from relatives during visiting periods.
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classifier match
Inquiry recommendation
36match
R10 - CDI patient information
Health Boards should ensure that patients diagnosed with CDI are given information by medical and nursing staff about their condition and prognosis.
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classifier match
Inquiry recommendation
32match
AS-6 - Informing Detainees of Rights
All detainees should be clearly informed of their rights and obligations as soon as is practicable upon arrival at any detention facility. As a minimum this should include informing the detainee as to the reason(s) for his detention and explaining, in clear and basic terms, that his human rights will be protected and respected.
Matched on
classifier match